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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
189 questions

Anyone Have Vision Issues? Blurry Vision? Did You Get An Answer For It? Vitamin Deficiency Since PBC Interfears With Assimilation? Other?

A myPBCteam Member asked a question 💭
A myPBCteam Member

Low vitamin A levels can lead to night blindness, making it difficult to see in low light. This can be a concern for people with PBC due to issues with nutrient absorption. If you suspect vitamin… read more

posted 3 hours ago

I've Had A Bad Head Cold This Week And I Have Lab Work Scheduled On Wednesday. Does Anyone Know If I Should Wait To To Have It Done?

A myPBCteam Member asked a question 💭
A myPBCteam Member

Thanks, Lynn. Iam feeling better, thanks! I did call the office and they just said to see how I felt. I was just wondering if anyone knew if it may skew my results.

posted July 6

What Do You All Take For The Fatigue. Seems To Be Getting Worse On Certain Days.

A myPBCteam Member asked a question 💭
A myPBCteam Member

Yes, mine was removed 4 years ago. No complications for me. Surgeon was aware of my PBC, but we were not aware I had progressed to cirrhosis. He did a biopsy during the gallbladder removal and… read more

posted July 5

Ursodol Shouldnt Hurt You ., Find A Different Maker... Switch To A Different Pharmacy . I Did And I Cut My Pills In Half.

A myPBCteam Member asked a question 💭

I meant shouldn't hurt you I switched to a different pharmacy and they had a different maker this does not hurt me .

A myPBCteam Member

Of course I did it with guidance and education . I'm on my dose and feel fine .

posted July 3

Is Anyone’s GI Requiring An Alpha Feta Protein Blood Test? Mine Has Been Slightly Elevated One Or Two Numbers. Medicare Won’t Cover For PBC

A myPBCteam Member asked a question 💭
A myPBCteam Member

For diagnosing and monitoring Primary Biliary Cholangitis (PBC), the following tests are commonly used:

- Blood Tests
- Liver Function Tests: Measure elevated liver enzymes, particularly alkaline… read more

posted June 29

Does Anyone Experience Lower Abdominal Pain? My Liver Dr. Dismissed It As PBC Related Or Attributes It To Urso. I Have Other GI Issues.

A myPBCteam Member asked a question 💭
A myPBCteam Member

Lower abdominal pain is not typically associated with Primary Biliary Cholangitis (PBC). PBC-related pain is usually in the upper right part of the abdomen, where the liver is located, or the upper… read more

posted June 20

I Was Tested For Sjogrens And The Bloodwork Showed I Had Strep B. Taking Antibiotics Now. Does Strep B Affect The Liver And Other Organs?

A myPBCteam Member asked a question 💭

I have PBC and Fatty liver disease. I was tested for Sjogrens. Blood work was elevated. It showed I have Strep B. I am on third antibiotic now trying to clear this up. I will see rheumatologist in August. I have joint pain and urinary tract issues. I recently had cortisone shot in my hip. So is it likely my issues all stem from PBC?

Are You Frustrated With Finding Effective Treatments For Primary Biliary Cholangitis?

A myPBCteam Member asked a question 💭
A myPBCteam Member

My liver numbers are still good, so not on medication, but struggle with fatigue and dizziness. I don't see anyone else mentioning being dizzy or off-balance all the time. Wish there was something… read more

posted July 2

Has Anyone Been Treated With Wegovy

A myPBCteam Member asked a question 💭

I'm Having Alot Of Swelling In My Hands And Feet And Stomach. Is Anyone Else Experiencing This?

A myPBCteam Member asked a question 💭
A myPBCteam Member

Yes, swelling in the feet, ankles, and abdomen is a common symptom for people with Primary Biliary Cholangitis (PBC). This can be due to edema, which is fluid buildup in the lower body, or ascites… read more

posted June 13
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