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Questions & Answers

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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
125 questions
Does Anyone Else Have An ALP Of 300 But No Other Blood Test Indicators Of Their PBC? Even My Bilirubin Is Normal. Only Vit D Is Low.
A myPBCteam Member asked a question 💭
posted 3 days ago
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A myPBCteam Member

I have had biopsy and fibroscan done ....yes to PBC confirmation.

posted 3 days ago
I Was Wondering If There Are Any People In The Group From The Boulder Area?
A myPBCteam Member asked a question 💭
posted 6 days ago
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Have Any One Else. Heard That Even On URSO .. And Your Liver Enzymes Is Normal Again. Don't Mean The PBC Isn't Progressing..
A myPBCteam Member asked a question 💭

I read that's it's just bring your liver enzymes down. But don't stop the progressive of it..

posted April 29
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A myPBCteam Member

I’ve had pbc for 10 years and I am 83. Numbers are great and I feel great. I go for blood work and US every 6 months. Been on ursodiol 300 mg 2x day. I think it keeps pbc stable!!

posted 6 days ago
Diagnosed At Stage 3 Almost 10 Years Ago. What Is The Normal Prognosis?
A myPBCteam Member asked a question 💭
posted April 27
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A myPBCteam Member

Ursodiol has kept me steady all this time. Fingers crossed for another 10 years.

posted 3 days ago
Is Anyone Else In F3 And For How Long And What Meds Do You Take?
A myPBCteam Member asked a question 💭
posted April 27
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I'm Wondering If It's OK To Go Into Tanning Bed ? I Read That UV Lights Were Ok But Does Anyone Know For Sure ? Thanks In Advance.
A myPBCteam Member asked a question 💭
posted April 26
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A myPBCteam Member

No answer yet .

posted 2 days ago
Is Any One Else Cholesterol Is High?. But Not Getting Medicine For It. If So What Are You Taking?
A myPBCteam Member asked a question 💭
posted April 22
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A myPBCteam Member

Thank you all for the answer and what you taking for it.

posted April 29
What Tips Would You Share To Help With Seasonal Allergies?
A myPBCteam Member asked a question 💭
posted April 22
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A myPBCteam Member

Claritin D as needed

posted 4 days ago
Anyone Have Success Stories With Supplements? Omega-3? Milk Thistle? Probiotics? Have Docs Discouraged Supplements Like They Have With Me?
A myPBCteam Member asked a question 💭
posted April 21
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A myPBCteam Member

I took milk thistle religiously 3 x day for months and saw no improvement in blood tests.

posted 3 days ago
Why Do People On Here Hardly Ever Answer A Question. All. Many Do Is Give Hugs Or Likes. We Are Looking For Support
A myPBCteam Member asked a question 💭
posted April 21
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A myPBCteam Member

Maybe so. Thanks for your input

posted April 22
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