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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Is Any One Else Cholesterol Is High?. But Not Getting Medicine For It. If So What Are You Taking?

By A myPBCteam Member 18 answers

Could You Share Any Dietary Changes And Tips That Have Helped With PBC?

By A myPBCteam Member 14 answers

Have Any Of Yours Doctors Made You Get The Heptis B Shots. I Was Like My Life Style Is Not Like That. But She's Said It's So Much Going Arou

By A myPBCteam Member 11 answers

Which Primary Biliary Cholangitis Symptom Surprised You The Most?

By A myPBCteam Member 23 answers
261 questions

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

Stick to your diet plan. But your allowed a little Holiday “Be good to yourselves”. But then after the holidays are over with “Jump back” into your plan. But above all take it one day at a time!

19 hours ago

Hey! Doc Wants Me On Ocaliva Has Anyone Else Had To Be On Both Med (URSO/Ocliv

A myPBCteam Member asked a question 💭
Philadelphia Area, PA
A myPBCteam Member

Yes, it is common for people with Primary Biliary Cholangitis (PBC) to be prescribed both Ursodeoxycholic Acid (UDCA) and Ocaliva (Obeticholic Acid). Here are some key points:

- Combination Therapy… read more

October 12

Is There A Cure For Pbc

A myPBCteam Member asked a question 💭
Ft Washakie wyoming
A myPBCteam Member

There is currently no cure for primary biliary cholangitis (PBC). Treatment focuses on slowing down the disease progression and preventing permanent liver damage. Medications, lifestyle adjustments… read more

October 12

I Have Been On Ursodiol 2022 Numbers Not Really Going Down So They Gave Me Ocaliva ,but I Have Not Started Because I Really Don't Know If

A myPBCteam Member asked a question 💭
Pine Beach, NJ

also I have osteoporosis not sure what to take any what are you doing PBC and Sjogens

A myPBCteam Member

I took 5mgs of Ocaliva for 6 months it did not lower my alt, in fact it increased. Dr raised it to 10mgs and boy that did it, I was practically clawing myself from itching. After 3 days, I stopped… read more

October 14

How Do You All Deal With The Overwhelming Fatigue?

A myPBCteam Member asked a question 💭
Amelia, OH
A myPBCteam Member

Low fat protein and exercise helps with brain fog and fatigue.

6 days ago

Considering Changing My Med To Livdelzi To Help Decrease My Alkaline Phos. Does Anyone Have Any Info On This Drug? Is Anyone Taking It?

A myPBCteam Member asked a question 💭
Columbus, OH
A myPBCteam Member

Livdelzi (seladelpar) is a medication approved by the FDA for treating primary biliary cholangitis (PBC) in adults. It can be used in combination with ursodeoxycholic acid (UDCA) for those who do not… read more

October 9

Is Anyone's Veins Starting To Collapse When Getting Blood Tests Done. The Nurses Are Now Using Baby Needles In My Hand To Get Blood

A myPBCteam Member asked a question 💭
Belfast, UK

Who Has Osteoporosis And What Are You Treating It With?

A myPBCteam Member asked a question 💭
Oakland, NJ
A myPBCteam Member

Hi Kathy
I take Better Bones Builder from Women’s Heath. My Liver Doctor approved it for me. Always talk to your Doctor before adding anything. I also wear a weighted vest
around the house for a… read more

October 7

Is Anyone Having A Problem With Bleeding Gums? Before Going On Urso I Had Extensive Bruising. That's Gone, But I Have Bleeding Gums Now.

A myPBCteam Member asked a question 💭
Decatur, IL
A myPBCteam Member

Hi Roberta. I had that for awhile. I was put on a prenatal for anemia but also amped up my vitamin C and it went away. I think it is a sign of vitamin deficiency.

September 25

Do You Often Feel Like You Are Fighting A Bug And Starting To Get Sick?

A myPBCteam Member asked a question 💭
Vancouver, BC
A myPBCteam Member

My Doctor said this feeling is due to not enough protein. At 5’7 and 170 lbs , I consume about 80 grams of protein a day. Organic chicken , cooked fish like cod and salmon, eggs, no salt beans… read more

6 days ago
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