How Do You Find A Doctor Who Specializes In PBC?
Best way is to find a list of liver doctors or GI doctors and ask them how many people with PBC they have treated or are currently seeing. That made the difference between my well meaning old doctor who had no experience, and my new doctor who had the experience to help me actually deal with my symptoms!
My GI specialist has been amazing. She did send me to a liver specialist nearby , he did my liver biopsy for my diagnosis.
I think it depends on where you live. I am just seeing a local gastroenterologist. To get a specialist I would have to travel to a more metropolitan area. You could check out well known medical facilities to see if they have specialists. For me it would mean going to Chicago, St Louis, or Mayo Clinic. I have not looked into it yet.
There Are No Hepatologists In My Area. Do I Ask For A Referral From My PCP Or The Gastroenterologist?
I Have Lost Over 4 Stone And They Cannot Explain Why. Itβs Almost Like My Body Is Starving Itself. Is This All Due To PBC? Any Ideas? X
Once You Have Been Diagnosed Are You Supposed To Go Straight On The Medication Or Do They Wait? Does Everyone Need To Go On It?
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