primary biliary cholangitis pbc vs primary sclerosing cholangitis psc differences and PBC | myPBCteam
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Has Anyone Had Any Problems With Their Ears And Lost Pressure?
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A myPBCteam Member

I have had ear problems my whole life. I've never heard of an association with PBC. Doesn't mean there isn't one.

Do You Need A Liver Biopsy For A Diagnosis?
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A myPBCteam Member

Thanks. When I read back at my statement, I wasn't really clear. Certainly a liver biopsy isn't the first step to diagnosis!

Anyone Have Success Stories With Supplements? Omega-3? Milk Thistle? Probiotics? Have Docs Discouraged Supplements Like They Have With Me?
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A myPBCteam Member

Had a hep doc appt yesterday--I got a strange look when I asked if Vit E was toxic (based on comment above)...it absolutely is NOT! Just don't take more than you need.

What Advice Would You Give To Others Living With PBC?
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A myPBCteam Member

Just take one day at a time!! If you are able to get out of bed and can do a little something that’s better than doing nothing at all.Live your life to the fullest. Pace yourself, don’t try to do… read more

Does Anyone Have Muscle Pain, Primarily In Their Legs? I Understand Fatigue Is Part Of This Disease. I’ve Been Diagnose With PBC Since 2000.
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A myPBCteam Member

My pain is in my feet! Upon getting out of bed, I can't walk, it hurts so bad. EMG test shows no neuropathy, per se my neurologist. Anyone else moving slow due to pain in the foot. Getting out of the… read more

I Have A Gastro MD Following My PBC. Should I Have A Hepatologist Take On My PBC Care?
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My PBC Treatment Journey (VIDEO) Read Article...
A myPBCteam Member

Thank you

Does PBC Cause Vertigo?And If So What Can I Do About It.
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I have PBC, IBS, GERD, hyenas hernia. fibromyalgia, arthritis. Lactose intolerance.

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A myPBCteam Member

Yes Laidannne sorry for missing spelling it.

I Have PBC & Sjogrens. Docs Talk PBC But I Think Sjogrens Causes Daily Issues. Are You Confused About What/how To Treat & Causes ?
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A myPBCteam Member

It’s just impossible to figure out what symptom belongs to what disease and how to treat or manage it

Just Recently Diagnosed With PBC So All Of This Is Very New To Me. What Does It Mean To Be AMA Negative With PBC?
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A myPBCteam Member

I am AMA negative too. The antimitochondrial antibody (AMA) test is one of several different bloodtests doctors can order when they suspect liver disease. 95% of people with PBC are AMA positive… read more

I Have PBC Can PPI's Cause This
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What Causes Primary Biliary Cholangitis (Formerly Primary Biliary Cirrhosis)? Read Article...
A myPBCteam Member

Sally I don't think so but PPIs do carry other risks.