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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does anyone else think PBC affects your bones? I got osteoporosis really bad.

A myPBCteam Member asked a question 💭
Shreveport, LA

My Arthritis Dr. Think PBC cause it to be worst. Cause we not getting the supplement to our bones. Iam on Prolia bone treatment every 6 months for 7 years and my bones have not improved..

May 31, 2024
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Answer Summary

Members strongly agreed that PBC affects bone health, with many sharing personal diagnoses of osteoporosis and joint pain they believe are... Read more

Members strongly agreed that PBC affects bone health, with many sharing personal diagnoses of osteoporosis and joint pain they believe are connected to poor vitamin absorption caused by the condition. Several members noted that PBC interferes with fat-soluble vitamins like D and K, and many shared treatments they have tried, including Alendronate, Fosamax, Prolia, and infusions, with mixed results. A recurring theme was the frustration of doctors not always acknowledging the link between PBC and bone or joint issues, paired with encouragement to keep advocating, get regular DEXA scans, and stay active.

A myPBCteam Member

I don't have osteoporosis but did have very low levels of Vitamin D. This can be associated with PBC. Without vitamin D, the body can't utilize calcium properly, hense the osteoporosis. I'll be taking D forever,I guess.

May 31, 2024
A myPBCteam Member

I have joint pains bad, and frustrated because the heptologist I recently saw insisted that PBC does not cause joint pain. Yet I read otherwise everywhere 🤷‍♀️

November 7, 2024
A myPBCteam Member

I just went to my Reumatologist and she informed me I do have osteopereosos but did not think I was ready for injection which I will not do unless absoloutely necessary. She did recommend something else starts with an f. Cannot remember the name of it. Decided not to do anything until I have next bone scan. Yes PBC does go along with causes of osteoperosis.

June 1, 2024
A myPBCteam Member

Thank you. Yes it was fosamax

June 18, 2024
A myPBCteam Member

My doctors think it caused osteoporosis. I had 7 compression fractures. Not
totally right after 15 months.

February 23, 2025

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