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A myPBCteam Member asked a question 💭

Not yet diagnosed but researching until my next doctor's appointment: I had one round of bloodwork done and based on the results, my hepatologist sent me for another round. Those results came back positive for AMAs (63.9). Of course, I referred to my "round-the-clock doc" that led me to a PBC diagnosis. Did anyone get diagnosed based only on this? Any insight into your liver biopsy procedures?

September 9, 2024 (edited)
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A myPBCteam Member

Thanks, Lynita! Currently, my ALP levels are normal, though. Guess I'll see what he says next week.

September 11, 2024
A myPBCteam Member

Helpful information - thank you! Healthy wishes for you!

October 8, 2024
A myPBCteam Member

Being in the beginning stage Nutrition and Exercise is the key. I am 70 and have good numbers, no itch, and feel good. It takes work. I don’t salt my food. I read labels to check salt, sugar, fat content. No process foods. Organic and fresh.
Wholegrain bread and brown rice. I have to eat around 60 to 90 grams of protein
daily to keep muscle mass. I no longer crave a large piece of chocolate cake or
a glass of Baileys on ice. I am focused on following my Liver Doctors orders and keeping my Liver calm. We are here to support your journey. You are not alone.
Best wishes
Deb

October 8, 2024
A myPBCteam Member

Thank you for that! I had my liver biopsy and all was clear there. I had a terrible time with pain and was in the ER the day after. They did labs and the ALT and ALP were back down to normal but AST still a little high; they didn't test for ALP so not sure there. I meet back with the doctor next week and will see what he says. Based on what I know now, I think it'd not be a good idea to start URSO? It just seems like it's waaaaay too early.

October 8, 2024
A myPBCteam Member

It sounds like your PBC has been early.
URSO
Get a book on what to eat and not eat
Talk to your doctor about vitamins and herbs and follow what he says
Exercise,
Hydrate
Rest
Best wishes

October 7, 2024

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