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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 26, 2024
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A myPBCteam Member

Make sure to have your doctor check your kidney function on Spironolactone. I had been taking that medication and my Creatinine level went very high. They had to take me off the medicine. If you wear compression socks, it helps with the swelling and eating a low salt diet is also very important. Good luck.

October 15, 2025
A myPBCteam Member

Yes, me too. I’ve had it about eighteen months now but I’ve also got a spleen that’s a foot long so needs more space and also I’ve just started water tablets as I’ve started getting fluid build up in my stomach. It’s horrid as I’ve never had a ball shaped tummy before aside from being pregnant. 🤣

October 25, 2025
A myPBCteam Member

I try not to get depressed..but it is hard

September 22, 2025
A myPBCteam Member

I have a big belly as well. I have had people to ask when my baby was due!!

September 22, 2025
A myPBCteam Member

It's hard to wear clothes...

September 22, 2025

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Greenville, SC