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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 1, 2025
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Members shared a range of ways to manage the cost of ursodiol after retirement, with options including GoodRx (around $55 to $168 for a 90-day... Read more

Members shared a range of ways to manage the cost of ursodiol after retirement, with options including GoodRx (around $55 to $168 for a 90-day supply depending on dosage and pharmacy), Medicare Advantage plans, and patient assistance programs like TAFCares.org. Several members recommended working with a Medicare broker or the eHealth website to find a plan that best covers prescriptions, and noted that prices vary significantly between pharmacies and plan types. A recurring theme was the importance of researching options early, comparing plans carefully, and knowing that assistance programs exist for newer and more expensive medications like Livdelzi and Iqirvo.

A myPBCteam Member

I just searched myself, and if I were to start Medicare for the 1st time, there is a payment for ursodiol. I looked at Humana, United Health, and Blue Cross/Blue Shield. I did that premiums or coverages will increase, and many medical providers are dropping their Medicare Advantage contracts. You may want to check out this article for further insight. Don't give up! Where there's a will, there's a way.
https://www.medicalnewstoday.com/articles/medic...

Medicare open enrollment: 3 key changes to costs in 2026
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November 4, 2025
A myPBCteam Member

I have Medicare Advantage, and it covers 100% of everything except specialty drugs (i.e., Ocalivia, IqirVo, and Livdelzi). Check Medicare Advantage Humana and/or the manufacturer as well. I take Livdelzi, and the manufacturer covers it. You can check this link: www.TAFCares.org

https://www.TAFCares.org
November 4, 2025
A myPBCteam Member

Medicare doesn’t pay for Urso. However, my part D plan G does. Tho it costs me about $900/ yr. It’s been changing a bit every year cuz part D plans have been redesigned every year since I retired 3 yrs ago. Hopefully it will stabilize.
Lew

15 hours ago
A myPBCteam Member

I use good rx I pay around 168.for 3 months supply for ursodiol 1000,mg daily

January 19
A myPBCteam Member

Medicare Humana Advantage pays $47.00 monthly. I signed up for home delivery thru Humana for every 3 months supply for $119.00 delivered to my home.
They stay in contact with my Doctor to keep my supply steady.

Medicare has you sign up for a prescription plan. $500 to $600 deductible. For example: it starts out at around $67.00 a month. It decreases thru out the year when the deductible is met.. it was $10.00 in December. This is how it works in Washington State. Go thru a medical broker or E Health website. They will make sure your Doctor, Dentist, Eye Doctor and Specialist accept Medicare. They will work with you on prescription cost. They are the experts. Medicare costs around $207.00 a month that comes out of your Social Security check.

Beware : Social Security checks will decrease around 2033 if nothing is done to increase the budget. It is stated on the SS website. It may decrease by 25 percent. Please do your research before you retire. Your Doctor may give you a 3 months supply to assist with your transition from work insurance to Medicare.
Best wishes
Deb.

January 17

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