Would it help for him to read an article about it to see how it is one of the main symptoms of PBC? I have described it as a "force field" that is bearing down on me. Sometimes it is just a sudden loss of energy, like I'm going along sort of okay and then I feel zapped of any energy. On other days it's a slow leaking of energy. My window of activity has narrowed down to 8:00am to 3:00pm. And that's a good day. I can't do things in the evening. I don't get a second wind any more. It is so challenging. My husband is finally used to all the different ways I experience fatigue on any given day. It is hard for loved ones to get it because we often look just fine on the outside. Hope things get better for you.

At least it’s only that way 20% of the time it’s that bad. My therapist has been teaching me the spoon theory so most days they’re still stainless steel and not plastic sporks with broken handles and teeth missing. 🤪

Glad you have a sense of humor about it. Sorry your fatigue is so debilitating! Sending lots of positive vibes to you!

Yes!!

I describe it as not sleeping for 3 days then trying to work a double shift while carrying 50 pound weights on my legs while fighting the flu after falling down a flight is stairs and having so much to drink I need a wall to hang onto to stay upright.
Going to bed to sleep and waking up and still feeling like I did when I went to sleep only with a headache too.