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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has anyone else had MONO bad as a child and then continue to have high numbers that show active infection with absolutely no symptoms?

A myPBCteam Member asked a question 💭
Tulsa, OK

My previous doctors (I saw about 4 or 5) that were looking into this can’t explain it and the last one said “I don’t know why or what else to do) that was a rheumatologist/immunologist. I had MONO when I was 15 and it was severe. I know the test will show you have had it in the past and those do but it also shows active infection yet I am not sick with it.

March 16
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A myPBCteam Member

It is EBV numbers. EBV-VCA, IgG; EBV-VCA, IgM; Epstein-Barr nuclear antigen antibodies (EBNA). When I was diagnosed with PBC and AIH it was because of high liver panel numbers Including Alk Pos. They did a biopsy and confirmed both diagnoses.

March 18
A myPBCteam Member

This is all very interesting to me. What are the high numbers showing up in your blood work? Alp etc?

March 17
A myPBCteam Member

Yes they ran all the EBV test. They always show active infection as well as past. I do not have my gallbladder either. I have seen through my research that EBV is possibly related to Autoimmune and so I was very curious as I have PBC with overlap AIH. I am about to find a new Rheumatologist so ai plan to bring it up again. I have never been the same since have MONO at 15 yrs of age. It’s been a down hill battle from then. Thank you for you reply ❤️

March 16
A myPBCteam Member

I haven’t with my new doctor but did with my other liver doctor before I moved. He didn’t seem like he even wanted to discuss it.

March 16
myPBCteam

Has anyone else had severe mono as a child and then continued to have high numbers showing active infection without symptoms?

Your question about mono and persistent test results isn't directly related to PBC, but it's understandable you're looking for answers about confusing lab results. The search results provided focus Show Full Answer

Has anyone else had severe mono as a child and then continued to have high numbers showing active infection without symptoms?

Your question about mono and persistent test results isn't directly related to PBC, but it's understandable you're looking for answers about confusing lab results. The search results provided focus specifically on PBC diagnosis and antibody testing rather than mono (Epstein-Barr virus).

What might be more relevant to your PBC journey is understanding that autoimmune conditions can sometimes involve confusing antibody patterns. Some myPBCteam members have experienced situations where their doctors found unexpected antibodies or had difficulty explaining certain test results during their diagnostic process.

If you're asking because you're wondering about a connection between your mono history and your PBC diagnosis, it's worth discussing with your hepatologist. They can help clarify whether any of your current lab abnormalities are related to PBC itself, which is diagnosed through specific markers like antimitochondrial antibodies (AMA) and elevated liver enzymes like alkaline phosphatase (ALP).

Have you been able to discuss these persistent mono markers with your current PBC care team? They might have insights about how autoimmune conditions can affect various antibody levels.

March 16

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