PBC Questions and Answers | myPBCteam

Connect with others who understand.

sign up Log in
Quick Links
Q&A Resources Treatments A-Z Help Center Community guidelines Crisis Accessibility
About myPBCteam
What is myPBCteam Terms of use Privacy policy
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
130 questions
Why Do People On Here Hardly Ever Answer A Question. All. Many Do Is Give Hugs Or Likes. We Are Looking For Support
A myPBCteam Member asked a question 💭
posted April 21
•
Be the first to like/hug
A myPBCteam Member

Maybe so. Thanks for your input

posted April 22
Does PBC Cause Vertigo?And If So What Can I Do About It.
A myPBCteam Member asked a question 💭

I have PBC, IBS, GERD, hyenas hernia. fibromyalgia, arthritis. Lactose intolerance.

posted April 20
•
View reactions
A myPBCteam Member

Yes Laidannne sorry for missing spelling it.

posted May 11
How Does The Pain EVER Go Away In Your Bones? Meds, Creams, Patches DO NOT HELP THE BONES!!
A myPBCteam Member asked a question 💭
posted April 20
•
View reactions
A myPBCteam Member

I just had a bone scan last week--still waiting on results...I don't get much help from doctors on pain/symptom relief--no matter what it is. I take Advil-even though we're not supposed to. But for… read more

posted May 11
I Have PBC & Sjogrens. Docs Talk PBC But I Think Sjogrens Causes Daily Issues. Are You Confused About What/how To Treat & Causes ?
A myPBCteam Member asked a question 💭
posted April 13
•
View reactions
A myPBCteam Member

It’s just impossible to figure out what symptom belongs to what disease and how to treat or manage it

posted April 16
Newly Diagnosed With PBC. Has Anyone Had Pancreatitis Symptoms For A Few Hours After Taking A Dosage (2 500mgm Tablets) Ursodiol?
A myPBCteam Member asked a question 💭
posted April 11
•
View reactions
A myPBCteam Member

I don't have any problems now with taking ursodiol . I take all 3 tabs after breakfast around 8:30 or 9am.

posted April 22
Has Anyone Tried Using Artificial Tears For Dry Eyes? Did It Help?
A myPBCteam Member asked a question 💭
posted April 10
•
View reactions
A myPBCteam Member

Thank you everyone for all your helpful answers 🙏

posted April 11
So Who Will Be Watching The Solar Eclipse April 8th? I’m In Northern Illinois So We Should See Almost Totality.
A myPBCteam Member asked a question 💭
posted April 7
•
View reactions
A myPBCteam Member

It was amazing here in Maine

posted April 16
Does Anyone Have An Enlarged Spleen?
A myPBCteam Member asked a question 💭
posted April 7
•
View reactions
A myPBCteam Member

Thanks. My fibro scan didnt showed any significant scaring yet. My hemtologist said she didn't see anything not expected due to PBC and cleared me for hernia surgery that I have been avoiding. This… read more

posted 2 days ago
Is Anyone Taking Ocaliva Along With Ursodiol? My Current Gastroenterologist Wants Me To Add This As My ALP Is Rising Slightly.
A myPBCteam Member asked a question 💭

I was diagnosed in 2003 and have been stable at stage 1-2 since then. My ALT and AST are slightly elevated but stable. My ALP is what Dr. is worried about even though it is 167. I take 900 mg per day of Ursodiol. I am worried about adding another medication with unknown side affects and efficacy. I have no real symptoms right now other than some fatigue and occasional mild itching. My last test showed little to no liver scarring/damage
Thank you all in advance for any information you can… read more

posted April 6 (edited)
•
View reactions
A myPBCteam Member

I have been on Urso since my diagnosis in 2008 as well as Ocaliva. I participated in the final clinical trials for Ocaliva and it has helped to keep me symptom free (along with the Urso) until just… read more

posted April 29
I Was Wondering If Anyone Could Tell Me About Their Experience On Having A Liver Biopsy, I Am Scheduled Soon For One.
A myPBCteam Member asked a question 💭
posted April 6
•
View reactions
A myPBCteam Member

I had a biobsy about two years ago. It was c-scan guided and did not hurt of cause much discomfort. It took about an hour.

posted April 8