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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Does Anyone Else Think PBC Affects Your Bones? I Got Osteoporosis Really Bad.

By A myPBCteam Member 18 answers
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What's A Common Misconception About Primary Biliary Cholangitis?

By A myPBCteam Member 18 answers
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What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A myPBCteam Member 10 answers
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Does Anyone Ever Feel That People Just Don’t Understand How You’re Feeling When Fatigued And Have To Decline On Invitations Because Of It?

By A myPBCteam Member 16 answers
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332 questions

Should Those With PBC (and Likely Additional Auto Immune Diseases) Get Flu Or Covid (or Other) Vaccines? Seems Differing Thoughts

A myPBCteam Member asked a question 💭
Oneonta, AL
A myPBCteam Member

My hepatologist insists that I keep up with all vaccines. I have had every COVID vaccine available and get a yearly flu shot. I have also gotten hepatitis A and B vaccines plus the shingles, pneumonia… read more

November 10, 2024

Is Taking Bile Salts Helpful For PBC

A myPBCteam Member asked a question 💭
Grand Rapids, MI
A myPBCteam Member

Yes, taking bile salts can be helpful for managing Primary Biliary Cholangitis (PBC). Doctors typically prescribe bile acids to treat PBC because they help improve liver function. The U.S. Food and… read more

November 9, 2024

My Liver Biopsy Says Stage 4. Anyone In Stage 4? For How Long? I Have NO Symptoms Of Stage 4. What Are You Experiencing? Thank You...

A myPBCteam Member asked a question 💭
San Diego, CA
A myPBCteam Member

Hi Linda, I had an ultra sound with elasticity done a few weeks ago and the results showed stage 4/Cirrhosis, which Not only shocked me but scared me too. I too have NO symptoms, THANK GOD! My… read more

December 13, 2024

I Am Interested In Learning More About Seladelpar Which Has Been Recently Approved And Has Shown To Lower ALP Numbers. Has Anyone Tried It?

A myPBCteam Member asked a question 💭
Peniel, FL
A myPBCteam Member

Thank-you for letting me know what you learned. I was hoping the manufacturer's program would be more helpful to everyone due to the extremely high cost of their product.

November 5, 2024

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

A myPBCteam Member asked a question 💭
San Francisco, CA
A myPBCteam Member

Wow never heard of PBC being connected to enzymes or admitted it was. When I researched PBC in the beginning i kept coming across leaky gut could be involved with the autoimmune. DONT FORGET... I… read more

November 11, 2024

Hey! Doc Wants Me On Ocaliva Has Anyone Else Had To Be On Both Med (URSO/Ocliv

A myPBCteam Member asked a question 💭
Philadelphia Area, PA
A myPBCteam Member

Yes, it is common for people with Primary Biliary Cholangitis (PBC) to be prescribed both Ursodeoxycholic Acid (UDCA) and Ocaliva (Obeticholic Acid). Here are some key points:

- Combination Therapy… read more

October 12, 2024

Is There A Cure For Pbc

A myPBCteam Member asked a question 💭
Ft Washakie wyoming
A myPBCteam Member

There is currently no cure for primary biliary cholangitis (PBC). Treatment focuses on slowing down the disease progression and preventing permanent liver damage. Medications, lifestyle adjustments… read more

October 12, 2024

I Have Been On Ursodiol 2022 Numbers Not Really Going Down So They Gave Me Ocaliva ,but I Have Not Started Because I Really Don't Know If

A myPBCteam Member asked a question 💭
Pine Beach, NJ

also I have osteoporosis not sure what to take any what are you doing PBC and Sjogens

A myPBCteam Member

I take Prolia every six months . Been on it 7 years. But PBC does cause it.

October 24, 2024

How Do You All Deal With The Overwhelming Fatigue?

A myPBCteam Member asked a question 💭
Amelia, OH
A myPBCteam Member

Low fat protein and exercise helps with brain fog and fatigue.

October 15, 2024

Is Anyone's Veins Starting To Collapse When Getting Blood Tests Done. The Nurses Are Now Using Baby Needles In My Hand To Get Blood

A myPBCteam Member asked a question 💭
Belfast, UK
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