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How Has PBC Impacted Your Life?
A myPBCteam Member asked a question 💭
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A myPBCteam Member

Thank eveyone story of PBC. I quessGod does work in
Mysterious ways.

What Advice Would You Give To Others Living With PBC?
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A myPBCteam Member

Just take one day at a time!! If you are able to get out of bed and can do a little something that’s better than doing nothing at all.Live your life to the fullest. Pace yourself, don’t try to do… read more

What Are Symptoms You Experience With PBC?
A myPBCteam Member asked a question 💭
A myPBCteam Member

Sorry to hear of your troubles, hope that you get your relief with the steriods.

Hi I Started Taking Urso In February One Quarter Of Dose And Have Been Increasing It Slowly. I Have Pain On My Upper Right Side .
A myPBCteam Member asked a question 💭

I will call Dr. today. Does anyone else have this issue? It is not my stomach.

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A myPBCteam Member

Hi Teresa I also had pale clay colored stools after I started taking 250 mgs. Along with the aching pain that was constant. Did you have that also. If you don't mind telling us what other symptoms… read more

Just Started With Nose Bleeds Is This Normal
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A myPBCteam Member

I have not experienced nose bleeds

Just Started Taking Ursodiol. My Hepatologist Said There Is A Risk Of Hair Loss With This Medication. Has Anyone Experienced This?
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A myPBCteam Member

I am also taking vitamin d3 per my dr as my vitamin d was not even showing on my blood work. It has come up since last appointment. I have noticed some hair loss and hope that is does not get any… read more

Is Any One Else Cholesterol Is High?. But Not Getting Medicine For It. If So What Are You Taking?
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A myPBCteam Member

Thank you all for the answer and what you taking for it.

I Am Newly Diagnosed With PBC And Just Started The Ursidiol. 300mg 3 Times A Day. Has Anyone Noticed Hair Loss?
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A myPBCteam Member

Vitamin D is very good for your hair.

My Liver Doctor Said I Was Too Old To Get A Liver Transplant...I Am 74 Soon To Be 75...she Said It Was Too Dangerous For Me
A myPBCteam Member asked a question 💭
Can Primary Biliary Cholangitis Be Reversed? Read Article...
A myPBCteam Member

I was seeing a doc at UH Cleveland. I didn’t like what he said. Take ursodol and I’ll see you in 1 yr. I did my own diligence and looked into Cleveland clinic. Found a new specialist. He had me do all… read more

Why Don't We Have More Public Awareness Of PBC? Why Aren't Women Screened For It More Often?
A myPBCteam Member asked a question 💭

I showed elevated liver enzymes for 4 years while taking monthly lab draws for breast cancer treatment. Why don't Doctors at least screen for PBC for women? We have mammograms as part of routine screening, why don't we screen women for PBC when liver enzymes are elevated? I would think that earlier detection of liver issues would give better outcomes. Why is it found later rather than early in a disease that primarily strikes women? Is the screening a very expensive and complicated test? Why… read more

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A myPBCteam Member

You are so right ! I made a statement like that to some one else here. It should be screened. It was out of the blue for me ... I had no symptoms and I'm 64 I started taking urso but very slowly to… read more