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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 7, 2024
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A myPBCteam Member

After eating, no matter how little or much, I look 6 months pregnant for a few hours afterwards. I've been retired since Jan 1, but going back to work next week at the same part time position I had. It's physically demanding so I'm worried the low red & white blood cells and low platelets and hemoglobin will affect my energy and stamina.

April 17, 2024
A myPBCteam Member

I have the bloating also and am very discouraged about it. I have never had this horrible belly bulge. I have only been on orso since December and have gained 10 pounds, still wear the same size clothes, but shape has changed to ugly. I am only used to weight of 110. I still work 3 days a week and am very busy on those 3 days on my feet all day, so when I have a few days off I get caught up with house work and shopping etc. I am also a volunteer for the local historical society, so it is not like I am active. Guess just something I need to deal with, but cannot say I am happy about it

April 16, 2024
A myPBCteam Member

I think my belly looks like I'm 5 months pregnant most days. My weight hasn't changed, but my shape has. I stopped Ocaliva when I reached stage 4, cirrhosis. How is your appetite? I feel very full after a few bites.

April 15, 2024
A myPBCteam Member

I have bloating in my stomach. I am taking ursodiol since May 2021. Started ocaliva august 2023. Stomach bloating has gotten worse since starting ocaliva especially the last 3-4 months.

April 10, 2024
A myPBCteam Member

Maxed out on pills

April 8, 2024

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