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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 31, 2024
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A myPBCteam Member

I drink a cup or two of coffee every morning. I can't say it really makes a difference. Some days I just have to push through to get things done. Now that I'm retired and can manage my own schedule, I don't schedule anything early in the morning and try not to schedule more than one thinga day. A couple of times a week I try to leave the schedule open to rest/sleep as desired.
I have also relocated to an area where this is not only possible but the norm. The climate and hours of sunlight every day don't change much.
All of this has made me feel better but fatigue is a constant companion.

May 31, 2024
A myPBCteam Member

Lucky you tobe able to move to a climate that stays the same and more daylight. I live in Maine so in the winter the days are very short Consider yourself fortunate Good luck with this crazy PBC world. We all need it

June 1, 2024
A myPBCteam Member

I take caffeine pills but I don't drink coffee, so that way I'm not overloaded on caffeine. They help some, but not enough. I'm always tired.

May 31, 2024

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A myPBCteam Member asked a question 💭
Maine, NY