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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPBCteam Member asked a question 💭
Carlton, GA

I’ve been experiencing some brain fog and read that it can be a symptom of PBC. Has anyone else experienced brain fog with PBC?

August 26, 2024
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Reactions
A myPBCteam Member

Many suffer from this, myself included, but my wife updated my liver doctor and the Dr ordered lactulose. I had a reaction to lactulose and my Dr changed it to Xifaxan and it changed my life. Talk to YOUR liver PBC Dr about trying this

September 10, 2024
A myPBCteam Member

This is really frustrating for me. I’ve never experienced this to such a degree. I question if it’s brain fog or something worse creeping in

August 27, 2024
A myPBCteam Member

Yes most definitely. Talk with your doctor about xifaxan. It’s made a big difference for me.

August 31, 2024
A myPBCteam Member

Same here ladies!! It's embarrassing when you're in mid-conversation and you get tongue tied and it looks like you don't know what you're talking about..lol(not really funny). And yes remembering life events that family members bring up and you don't recall. It's crazy!! Much love to you all!!❤️❤️❤️

August 31, 2024
A myPBCteam Member

Oh yes I have it bad. Was thinking it was early dementia. Went to my neurologist he said it's the PBC causing it.

August 30, 2024

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