Hi Rebecca, the ultrasound that I had said that I was borderline stage 2-3. My numbers are good , so I am still on the URSO. Not sure what the side effects of URSO are, but I still feel pretty good. Just the fatigue is getting to me. Otherwise I pretty much keep to my same routine that I have done for years.

I to have been on ursodiol for over 30 years. When I started I was heading for the transplant list. I havent had any noticeable side affects and since taking this my PBS has been under control for many years. I swear by it and take it daily. Good luck to everyone who decides to try this path for treatment.

The answer to your question is yes you have to take Ursodoil and be very strict on taking the it twice a day. Also cut back on sugar, fats and salt. Research what harms the liver and how to thin your bile to keep it from backing up into your liver. Nutritionist T C Hale talks about bile flow and using Beet Flow. The liver will stop producing glucose which keeps muscle on us. It is important to eat low fat protein and lift weights to maintain muscle mass and strength.

I have been waiting for UCLA to get a ultrasound tech that specializes in looking for the elasticity of the liver which should tell me that stage that I am in with PBC. I had a liver biopsy done when I was first diagnosed with this 23 years ago, and they didn't say what stage I was at. I possible was a stage 1 at that time. Hopefully, they will let me know soon since they finally got someone who does that. I recently spoke to my doctor and she will keep updating me on that.

I think lol, but I know the 2 go together some how, sorry, I'm just finding out, like a couple weeks ago, but I'm a research nut and also very confused about this whole thing! It is just unbelievable 😕