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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPBCteam Member asked a question 💭
Sweden

My mum has recently been diagnosed with PBC
She has a terrible problem with her eyes, getting continous eye infections that require antibiotics every other month
Her eyes are so irritated and dry that she can hardly see. She takes a number of eye drops and salves, wears sunglasses etc, but nothing makes a lasting difference.
She also has a dry form of macular degeneration. But she does bot have Sjögrens syndrom.
Her quality of life is severly impaired and the only time she can relax is when… read more

May 18, 2025
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A myPBCteam Member

Oh thank you! Will definitely bring this up with the doctor:)
Happy that it helped you and thank you for sharing. /Emma

May 26, 2025
A myPBCteam Member

I too have severe eye issues with dry eye. A few months ago an ophthalmologist inserted plugs into my tear ducts called punctal plugs. This has really helped me with the burning pain from dry eye. Still have other issues with my eyes that I feel are diet related - but the plugs have made things more bearable.

May 25, 2025
myPBCteam

Dry eyes are a common symptom in PBC, even without Sjögren's syndrome. For immediate relief, artificial tears and nighttime eye gels available over-the-counter at pharmacies can help provide moisture. It's important to protect the eyes from environmental irritants that can worsen symptoms. Some practical steps that may help Show Full Answer

Dry eyes are a common symptom in PBC, even without Sjögren's syndrome. For immediate relief, artificial tears and nighttime eye gels available over-the-counter at pharmacies can help provide moisture. It's important to protect the eyes from environmental irritants that can worsen symptoms. Some practical steps that may help include:
- Wearing protective goggles or sunglasses when outdoors to shield eyes from wind, air, and dust
- Using cool or lukewarm water when washing face (hot water can increase dryness)
- Discussing prescription eye drops with her doctor for more severe cases
- Considering a procedure called punctal occlusion, which helps retain moisture in the eyes

Given the severity and frequency of her infections, it would be worthwhile to discuss with her healthcare team about adjusting her current treatment plan or exploring additional options for managing her eye symptoms.

May 18, 2025

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