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A myPBCteam Member asked a question 💭
Saint Augustine, FL
July 18, 2025
 · 
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Answer Summary

Members responded with strong recognition to the question about experiencing hot flashes without being in menopause, with many sharing that... Read more

Members responded with strong recognition to the question about experiencing hot flashes without being in menopause, with many sharing that night sweats and daytime heat waves are a regular and exhausting part of their lives with PBC. Several members described waking up drenched in sweat, throwing off blankets, and dealing with waves of heat throughout the day, with some noting it feels different from a hormonal flash and more flu-like. A recurring theme was that these symptoms are likely tied to liver disease itself, with many members calling for more research into PBC symptoms and finding comfort in knowing they are not alone.

A myPBCteam Member

Yes I do and am now into my 5th year of pbc. I do not experience it every night, but at least a couple nights per week. Go to bed cold and wake up throwing the blankets off me. Guess it is normal for us.

October 5
A myPBCteam Member

Yes, I do. You are not alone with it. We ate all in the same boat. Keep your chin up.

July 21
A myPBCteam Member

My A/C is working hard 🤪

August 2, 2025
A myPBCteam Member

Wow I thought I was alone! I have awful night sweats every single night!!

July 28, 2025
A myPBCteam Member

I do, in the day and at night. I am post menopausal. It feels different than a hormone flash, kind of flu like.

October 8

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