My pain has reduced a lot – I have no idea why. I still get tired – some days I’m productive some days, I am not.
I always feel better after swimming or doing water aerobics. My numbers are doing well – the Ursodoil is working.
September 1
Most all of my pain is in my muscles in my arms and legs!!
September 15, 2025
Your description of pain with PBC is quite relatable. Pain from PBC typically manifests in the upper right part of the abdomen (under the ribs) and can radiate to the back and shoulder blades, which aligns with your experience of the "rope tightening" sensation.
Many myPBCteam members report similar experiences with pain Show Full Answer
Your description of pain with PBC is quite relatable. Pain from PBC typically manifests in the upper right part of the abdomen (under the ribs) and can radiate to the back and shoulder blades, which aligns with your experience of the "rope tightening" sensation.
Many myPBCteam members report similar experiences with pain, including feelings of inflammation and specific discomfort in the liver area. At Stage 2 PBC, you may experience symptoms even with negative AMA results. It's important to track and report any pain symptoms to your healthcare provider, as they can help determine if the pain is directly related to PBC and recommend appropriate treatment options.
Common accompanying symptoms to watch for include:
• Itchy skin (pruritus)
• Swelling in legs, ankles, and feet
• Fluid buildup in abdomen
• Swollen veins in abdomen
September 15, 2025