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I found the questions that help them determine progress ( In the last 4 weeks have you). I decided to make it into a spreadsheet so I have the information for the Dr. since I can’t always remember my overall feelings the last month or two.

January 25
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A myPBCteam Member

GREAT IDEA!! I take notes in a notebook. I'm not good remembering numbers/dates so that helps me. I'll have to see if I can do the spreadsheet on my laptop.

January 26
myPBCteam

How do you manage answering your doctor's questions about your symptoms when brain fog makes it hard to remember?

Your spreadsheet idea is brilliant! Tracking your symptoms and feelings over time is exactly what many people with PBC find helpful when brain fog makes it hard to recall details during appointments.

Here are Show Full Answer

How do you manage answering your doctor's questions about your symptoms when brain fog makes it hard to remember?

Your spreadsheet idea is brilliant! Tracking your symptoms and feelings over time is exactly what many people with PBC find helpful when brain fog makes it hard to recall details during appointments.

Here are some strategies that work well:

* Keep a symptom journal or use apps designed for tracking PBC labs and symptoms
* Write down questions and concerns before appointments so you don't forget them
* Take notes during appointments to remember what was discussed
* Bring a trusted friend or family member for support and to help remember important information

A myPBCteam member shared a similar approach: "There are plenty of apps out there. There are lots of PBC groups who put forth apps where you can monitor your labs, or even just write them down in a notebook. That's how I started, and highlighting them and looking for trends."

Your spreadsheet gives you concrete data to share with your doctor, which can lead to more productive conversations about your treatment and symptom management. It also helps your physician see patterns they might otherwise miss.

This kind of preparation shows you're taking an active role in managing your PBC, which can lead to better care overall.

January 25

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