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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I would be very interested in natural products for this disease?

A myPBCteam Member asked a question 💭
North Augusta, SC
February 2
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A myPBCteam Member

Cheaper than what the new meds are. I do plan on asking about it on my next visit Sometimes I wonder if tnis is all a game to scare us and be a guinna pig for new meds. It is scary not knowing enough about things. Thanks

February 2
A myPBCteam Member

HI Ellen, I took Dose for a while, I talked to my heptologist about it and she told me not to take it. I think they have some concerns about turmeric. I just had my physical and my GP told me not to take turmeric, not sure why. Check with your specialist about it. It's also a little pricey for three bottles :)
My GP did suggest milk thistle though.

February 2
A myPBCteam Member

I think it is about time the drs do look into natural products for us to use. Who the hell can afford $12,000 a month for meds. All BS to me. I want to find out more about Dose

February 2
myPBCteam

What natural products might help with PBC symptoms?

While there's no cure for PBC, some natural approaches may help manage symptoms alongside your prescribed treatments. However, it's crucial to talk with your doctor before trying any natural products, as they can interact with your medications or affect your liver.

For Show Full Answer

What natural products might help with PBC symptoms?

While there's no cure for PBC, some natural approaches may help manage symptoms alongside your prescribed treatments. However, it's crucial to talk with your doctor before trying any natural products, as they can interact with your medications or affect your liver.

For itching relief:
- Moisturizers with emollients can help reduce dryness and itching by creating a protective barrier on your skin
- Choose fragrance-free products, as fragrances and essential oils can irritate your skin
- Avoid products with alcohol or retinoids, which can dry out your skin further

For dry mouth:
- Sugar-free gum or hard candy can stimulate saliva production
- Drinking plenty of water throughout the day helps

For dry eyes:
- Artificial tears or eye drops can provide relief

General wellness:
Some research suggests green tea may have liver-protective properties, though it's important to note that excessive consumption can have side effects. Always discuss this with your healthcare team first.

Important caution:
Avoid unvetted remedies like castor oil "detox" packs that circulate on social media. These haven't been proven effective for PBC and could potentially interfere with your treatment plan.

The most reliable approach combines your prescribed medications with lifestyle changes like staying hydrated, following a PBC-friendly diet, avoiding alcohol, exercising, and managing stress.

February 2

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