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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My sister just found out she has symptoms like me! Is it possible she may have PBC

A myPBCteam Member asked a question 💭
Massachusetts
February 18
 · 
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myPBCteam

Is it possible your sister may have PBC if she has similar symptoms?

Yes, it's definitely possible. Having a first-degree relative like a sister with PBC significantly increases the risk. If you have a parent or sibling with PBC, you're 100 times more likely to develop it than someone without that family history.

There's Show Full Answer

Is it possible your sister may have PBC if she has similar symptoms?

Yes, it's definitely possible. Having a first-degree relative like a sister with PBC significantly increases the risk. If you have a parent or sibling with PBC, you're 100 times more likely to develop it than someone without that family history.

There's even a documented case of four sisters who all developed PBC, suggesting the condition can run strongly in families. However, having a relative with PBC doesn't guarantee she'll develop it — other factors also play a role.

Since your sister is experiencing similar symptoms, it would be wise for her to see a doctor, preferably a hepatologist (liver specialist). They can run blood tests to check for:

* Antimitochondrial antibodies (AMA)
* Liver enzyme levels, especially alkaline phosphatase (ALP)
* Other markers that indicate PBC

Early diagnosis is important because treatment can help slow the progression of liver damage. Encourage your sister to mention your PBC diagnosis to her doctor, as this family history is a crucial piece of information for proper evaluation.

February 18
A myPBCteam Member

Well more dr’s need to know about PBC!! They have no clue! Gentics definetly play a big part how we got this!! We need more info out there, so dr will know what PBC is!!! Jody Allen

February 21
A myPBCteam Member

My aunt had this. Pretty sure my dad did. My youngest daughter has it and is on Urso. My oldest daughter probably has it just hasn’t gotten in to doctor. Not sure about my son. I think my older sister probably has it but she won’t get it checked. I don’t speak with my two younger sisters but wouldn’t be surprised if they had it. My dad lived to be 94, but last ten years weren’t the best.

February 19
A myPBCteam Member

I don’t know who I got this from! Did your mom live along time??

February 19
A myPBCteam Member

Hi Jody Yes it is possible. My mother had PBC and I was dx about 10 years later.

February 18

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