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Don't have high sodium my face blew up and I slept a lot, felt sick and almost fainting and crying

A myPBCteam Member asked a question 💭
United kingdom yorkshire
March 2
 · 
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A myPBCteam Member

Normanton, near Wakefield

May 30
A myPBCteam Member

@A myPBCteam Member that’s interesting I first went to my Dr because I was having regular episodes where my face became very puffy and retained fluid suddenly and I would get extremely tired it lasted about four day then stop, only to come on again a few weeks later. When I went kept going to back to see him about it he finally said let’s test your blood for a range of things and that’s how I found out I had issues with liver and then after more tests discovered it was PBC.

Not sure what the puffy face came from if it was PBC related or not - it hasn’t happened again in the last few months since taking Urso…but who knows

PS where in Yorkshire are you? I used to live in Sheffield and worked at Yorkshire Sculpture Park

May 30
myPBCteam

Are facial swelling, fatigue, weakness, feeling faint, and nausea symptoms of PBC?

Several of the symptoms you're experiencing are common with PBC, though facial swelling specifically isn't typically mentioned as a primary symptom.

Common PBC symptoms you're experiencing:

- Fatigue: This affects about 50-65% of people Show Full Answer

Are facial swelling, fatigue, weakness, feeling faint, and nausea symptoms of PBC?

Several of the symptoms you're experiencing are common with PBC, though facial swelling specifically isn't typically mentioned as a primary symptom.

Common PBC symptoms you're experiencing:

- Fatigue: This affects about 50-65% of people with PBC and is one of the most common symptoms. It can cause exhaustion, muscle weakness, lack of energy, and trouble concentrating.

- Weakness: Often occurs alongside fatigue as part of the overall tiredness that PBC causes.

- Nausea: Can occur with PBC, particularly during flare-ups or as the condition progresses.

About swelling:

PBC can cause swelling (edema), but it typically affects the feet, ankles, and legs rather than the face. This happens due to fluid buildup and is often related to portal hypertension or advanced liver disease. Abdominal swelling (ascites) is also possible.

Feeling faint:

While not listed as a primary PBC symptom, feeling faint could be related to fatigue, weakness, or other complications.

Since you're experiencing multiple concerning symptoms together, it's important to discuss them with your hepatologist. They can determine if these are related to PBC progression, a flare-up, or another issue that needs attention.

March 2

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