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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPBCteam Member asked a question 💭
Sweden

I am so very tired and my bloodwork came back with the iron in healthy range but the iron stores at the lowest end of healthy. I was wondering if iron supplements might help given I’m avoiding red meat? I already eat lots of kale, spinach etc and have it with vit C. Is this something any of you have experienced - low iron stores at a level of non-anemic iron defiiciency?

UPDATE
I am now taking Sucrosomial Iron

Apparently it’s a type that is better absorbed. It’s a form of iron that’s encased… read more

May 24 (edited)
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Reactions
A myPBCteam Member

I love a scoop of chocolate in my coffee too! Curious, which whey protein are you using? The creatine can really help in the afternoon as an energy boost. It also has a lot of other benefits. You don't want to take it at the same time as coffee or caffeine. I look forward to hearing what your hep doc thinks of creatine. :)

June 5
A myPBCteam Member

@A myPBCteam Member

I have just started to drink coffee to get the benefits because of PBC.

I have whey isolate protein powder every morning in my coffee.

I don’t take creatine will ask my hepto on next visit - wasn’t sure if ok.

I am now taking Sucrosomial Iron

Apparently it’s a type that is better absorbed. It’s a form of iron that’s encased in a phospholipid membrane (essentially a fat layer), which allows it to be absorbed through a different pathway in the gut. This bypasses the usual iron absorption mechanisms that cause nausea, constipation, and stomach upset.

Key benefits:

• High bioavailability despite a lower elemental iron dose
• Significantly fewer GI side effects than standard iron (ferrous sulfate or ferrous fumarate)
• Doesn’t need to be taken on an empty stomach
• A good option when standard iron isn’t tolerated or isn’t raising ferritin effectively

June 4 (edited)
A myPBCteam Member

Hi Pippa, I saw in an earlier post that you are eating enough protein so that should help but was wondering if you take creatine and collagen? Those have greatly helped my energy levels. I also put a scoop of a special protein power with lots of vitamins in my coffee. Do you drink coffee? It can be very good for our liver.

June 3
A myPBCteam Member

My ferritin is low 27ug/l as I have pbc and burnout that reading also might be inflated. It seems I should have ferritin bigger stores than that - the healthy range it up to 7- 120ug/l. I am asking GP to give me appropriate supplementation apparently low ferritin can contribute the brain fog in my context.

May 26 (edited)
myPBCteam

It's great that you're already eating iron-rich leafy greens and pairing them with vitamin C — that's actually a smart move, as vitamin C helps your body absorb plant-based iron more effectively!

That said, iron supplementation with PBC needs careful consideration. Even though your levels are at the low end of healthy, too Show Full Answer

It's great that you're already eating iron-rich leafy greens and pairing them with vitamin C — that's actually a smart move, as vitamin C helps your body absorb plant-based iron more effectively!

That said, iron supplementation with PBC needs careful consideration. Even though your levels are at the low end of healthy, too much iron can actually be harmful to the liver. This makes it really important to check with your doctor before adding iron supplements. Your fatigue may also not be solely iron-related. With PBC, there are several nutritional factors that can contribute to tiredness, including:

- Vitamin B12 — found in fish, eggs, and dairy
- Folate — found in beans, broccoli, and leafy greens (which you're already eating!)
- Vitamin D — often low in people with PBC
- Fat-soluble vitamins (A, E, K) — harder to absorb due to bile duct damage

It's worth asking your doctor to check these levels too, as addressing any deficiencies could make a real difference to your energy. Other non-meat iron sources worth adding alongside your greens include:

- Beans and lentils
- Tofu
- Fortified whole grains

Keep pairing them with vitamin C — you're already on the right track there! But please loop in your doctor before starting any iron supplement, as they can advise based on your specific liver health.

May 24

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