Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPBCteam Member asked a question 💭
United kingdom yorkshire
June 6
 · 
Reactions
A myPBCteam Member

Hi Lisa and Cindy, I am having low sodium as well. Just started about the time of PBC diagnosis, about 2 years ago. My GP had me reduce water to 32 oz a day...thats just 4 cups of coffee! Aso "eat more salt" ! Sodium comes up then... in a few months back down just a bit, but low.
It's low now but Oncologist just ran iron bloodwork. The scale shows minimum range is 16..and mine was 12. So Monday I am getting an Iron IV..Will have IV for 3 Mondays then just keep watchin it, I guess. Dr. say not being absorbed due to partial gastrectomy years ago. Not what I eat or iron pills.....go figure! It'a always something!

June 7
A myPBCteam Member

My son gives me electrolyte drinks and I am starting to feel stronger now. Not weak, thank goodness 🙏 😅

June 9
A myPBCteam Member

My son gives me electro

June 9
myPBCteam

That's a really frustrating situation, especially when you feel like you're doing everything right! Low sodium (hyponatremia) in PBC can happen for reasons beyond just diet. As PBC progresses, the liver can struggle to function properly, which can affect how your body regulates fluid and electrolyte balance — including Show Full Answer

That's a really frustrating situation, especially when you feel like you're doing everything right! Low sodium (hyponatremia) in PBC can happen for reasons beyond just diet. As PBC progresses, the liver can struggle to function properly, which can affect how your body regulates fluid and electrolyte balance — including sodium levels.

Here are some PBC-related reasons sodium may stay low:

- Fluid retention — As PBC advances, fluid can build up in the body (ascites or edema), which dilutes sodium levels in the blood
- Portal hypertension — Increased pressure in the liver's blood vessels can disrupt how the body manages fluids and sodium
- Reduced liver function — A less functional liver affects many processes, including maintaining proper electrolyte balance

It's really important to bring this up with your hepatologist if you haven't already. They can investigate the underlying cause and adjust your care plan accordingly. Low sodium can be a sign that PBC needs closer monitoring, so don't ignore it — your medical team needs to know.

June 6
A myPBCteam Member

Hi Cindy 🌸 ich sende dir liebe Grüße aus Berlin. Ich bin natürlich kein Facharzt, aber der Gegenspieler von Natrium ist Kalium und wenn Kalium zu hoch ist, dann fehlt Natrium.
Ich versuche morgens eine Tasse warmes Wasser mit einem guten Salz (keltisches Salz oder Meersalz) sowie einen Spritzer Zitronensaft zu mir zu nehmen. Wichtig an der Sache ist ein gutes Salz, kein verarbeitetes, welches mit Rieselhilfen oder ähnlichem angereichert ist, zu dir zu nehmen.
Durch das schwitzen deines Körpers aufgrund der Temperaturen verliert der Körper viele Mineralien gerade Natrium. Gutes Wasser mit einem guten Salz.
Kokos Wasser ist auch eine gute Idee, oder eine Elektrolytlösung.
Ich wünsche dir alles Gute und hoffe, dass dein Wert sich stabilisiert. Herzliche Grüße 🖖🏻 🌼🦋

June 9

Related Questions

View All
A myPBCteam Member asked a question 💭
United kingdom yorkshire

A myPBCteam Member asked a question 💭
United kingdom yorkshire

A myPBCteam Member asked a question 💭
United kingdom yorkshire