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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPBCteam Member asked a question 💭
WebsterNy
June 24
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A myPBCteam Member

Thank you for your help!!

June 24
A myPBCteam Member

Yes, gassiness is normal for PBC. When mine gets bad I use gas x. When I was first diagnosed my blood work was done every 2-3 months through my gastrologist and every 6 months with my primary physician. They share the results with each other. Now it's usually done every 6 months.

June 29
myPBCteam

Yes, bloating and gas are quite common with PBC — you're definitely not alone in this! When bile can't flow properly through damaged bile ducts, it affects how your body breaks down and absorbs fats, which can lead to digestive discomfort.

Many myPBCteam members have shared similar experiences, including:

- Feeling more Show Full Answer

Yes, bloating and gas are quite common with PBC — you're definitely not alone in this! When bile can't flow properly through damaged bile ducts, it affects how your body breaks down and absorbs fats, which can lead to digestive discomfort.

Many myPBCteam members have shared similar experiences, including:

- Feeling more bloated than usual
- Gas pain and stomach churning
- Heartburn and bloating after starting medications
- A swollen stomach even after losing weight

A few things that can contribute to gas and bloating with PBC include impaired liver function, changes in digestion due to reduced bile flow, and sometimes a bacterial imbalance in the small intestine. As for blood work, the frequency really depends on your individual situation and how your PBC is progressing. Here's a general idea of what to expect:

- Routine monitoring — Regular blood tests check liver enzymes like ALP, cholesterol, and AMA levels
- Stable cases — Some follow-ups, like cholesterol checks, may happen every few years if levels are good and there are no risk factors
- More advanced cases — If there are signs of progression like cirrhosis, monitoring can be as frequent as every six months

The best person to guide the exact schedule is your healthcare provider, as they'll tailor it to your specific needs and how your PBC is being managed.

June 24

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