Powered By
The fatigue is overwhelming. No amount of sleep, including taking naps, seems to alleviate it. I also have difficulty falling asleep and waking up in the morning even when I set my alarm. I retired a year ago after a 32 year career in secondary education. I was beyond exhausted. Thought retirement would help with the fatigue. Unfortunately, it has not.
Oh for sure fatigue was actually why I even made the doctor's appointment back in 2021 when I was diagnosed
Fatigue is REAL, mine is getting worse.
Hey Lew. When I was first diagnosed I went “crazy” doing research. Not everyone of us will have the same experience. I decided to just deal with symptoms as and when they occurred, and I’m now almost 71. I was diagnosed when I was 40. I think the fatigue is the biggest challenge, especially when you are working. I kept my condition hidden at work. Back then it was still called Primary Biliary Cirrhosis, and people would just assume you were a drinker. I think it’s a process you go through as you parse out what is happening with your body. I’ve had a low fat diet ( no fish and chips for this Cookie 😫 for 30+ years)!😂😂😂, drink lots of water, and keep moving. All the best (to us all).
What you're experiencing is incredibly common with PBC — you are absolutely not alone in this. Around 65% of people with PBC experience fatigue, and up to 20% describe it as severe and life-altering. Many myPBCteam members describe their fatigue as "unexpected," "exhausting," and even "devastating."
The frustrating truth Show Full Answer
What’s even more irritating than the relentless fatigue, is your doctor dismissing it as non-related to PBC. OK, I’m 84 and have no expectations that my body can operate at the same level as even several years ago. I take Ursodiol and my test numbers and scans are good but going downhill more every day.
Join
Your Privacy Choices
