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Do any of you guys know if people that has been giving liver transplant and has been doing well they want to do a transplant on me I'm just

A myPBCteam Member asked a question 💭
Hawkinsville, GA

Scared ..

August 8
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Is Bone Broth Good for the Liver? What To Know With PBC Read Article...
A myPBCteam Member

Hello Tammy
My mom had a liver transplant in 1992 at 65 yrs of age and lived another 22 yrs. The liver truly became part of her and stayed healthy. She changed the landscape for liver transplants because the surgeon had never done one at that age. After that he did many over 65 yrs.
Mom never looked back and was unstoppable. She did not die from PBC.
Now many transplants are done so often and the surgeons are so skilled that the success rate is over the top.
You are so fortunate to get a transplant. I wish you all the best!!

Vickie Boechler
Retired RN

August 11 (edited)
A myPBCteam Member

Hello! I'm 3 mo post and I've had a pretty good experience so far. If you do research on receipients and focus more on the ones that didn't have good experiences/outcomes, you're fears will get so much worse. We know things can teeter to either side but the outcomes at the chance of life/feeling good are great! I feel that I did a great job on reading up on the things that I definately knew would happen and the rest is up to our Savior. (pain, ICU, tubes, machines, constant vitals/meds, healing baby steps, support/care, hospital food (lol),tiredness, follow-ups, bloodwork, guilt/thankfulness, etc.- the major surgery post op stuff.) Shouldn't make it worse by over-anxieties. It's all good. Just go with it. That's my best advice. Good luck...God bless!!

August 9
myPBCteam

It's completely understandable to feel scared — that's a very human response to something this big. The good news is that liver transplant outcomes for people with PBC are genuinely encouraging.

Here are the survival rates for PBC patients after a liver transplant:

- 1 year — 94% survival rate
- 3 years — 91% survival Show Full Answer

It's completely understandable to feel scared — that's a very human response to something this big. The good news is that liver transplant outcomes for people with PBC are genuinely encouraging.

Here are the survival rates for PBC patients after a liver transplant:

- 1 year — 94% survival rate
- 3 years — 91% survival rate
- 5 years — 86% survival rate

Most people also report a significant improvement in their quality of life after transplant. One thing worth knowing is that there's a small chance PBC can return after a transplant (in about 20–35% of cases), but if it does, it tends to progress much more slowly and can usually be managed with medication.

After surgery, you'd take anti-rejection medications for life to help your body accept the new liver. Your care team will monitor you closely and help manage any side effects. Many myPBCteam members have been through this journey and come out the other side. You're not alone in feeling scared, and it's okay to ask your transplant team every question on your mind — that's exactly what they're there for. 💙

August 8

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