myPBCteam

First of all, trusting your instincts was absolutely the right call — and it's frustrating when doctors don't connect the dots. A three-year sore throat alongside dry eyes is worth taking seriously, especially with a new PBC diagnosis.

Dry mouth (and the throat discomfort that can come with it) is actually a recognized Show Full Answer

First of all, trusting your instincts was absolutely the right call — and it's frustrating when doctors don't connect the dots. A three-year sore throat alongside dry eyes is worth taking seriously, especially with a new PBC diagnosis.

Dry mouth (and the throat discomfort that can come with it) is actually a recognized symptom that can occur alongside PBC. Between 47% and 73% of people with PBC experience dry eyes and/or dry mouth. These symptoms are often linked to Sjögren's, which occurs in an estimated 35% of people with PBC.

It's worth knowing that Sjögren's can be tricky to diagnose — tests don't always catch it early, and symptoms can appear before a formal diagnosis is confirmed. So your instinct about early-stage Sjögren's is not unreasonable at all. When it comes to finding the right specialist, here are some directions worth exploring:

- Rheumatologist — specifically one with experience in autoimmune conditions and Sjögren's. If your current one isn't engaging, seeking a second opinion from another rheumatologist is very reasonable.
- Ophthalmologist — can formally evaluate and treat dry eyes, and may also flag signs pointing toward Sjögren's.
- ENT (Ear, Nose & Throat specialist) — could help investigate the persistent sore throat specifically, ruling out or identifying throat-related causes including dryness and inflammation.
- Hepatologist — ideally one who specializes in PBC and understands its broader autoimmune picture.

The "not my department" response from multiple doctors is unfortunately common with PBC, since it touches so many systems. Pushing for a specialist who has experience with autoimmune overlap conditions can make a real difference. In the meantime, if dry mouth and throat discomfort are part of what's going on, over-the-counter saliva substitutes (look for xylitol or hydroxyethyl cellulose on the label) may offer some relief. Just note that xylitol can cause stomach cramping in some people, so start slowly.

Keep advocating for yourself — your instincts have already proven right once. That's not nothing. 💙

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

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