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Since well being has a myriad of data points not relevant to all, this question may or may not be applicable to everyone, and has an infinite number of variables.
How many folks here are single vs married, and how does that help or hinder your wellbeing? Loaded question I know.
I have turned off AI response, as I want humans to answer human factors issues. Go figure lol.
If you’re more comfortable, please PM me if that’s possible. I don’t know if it is here.
Thank you in advance.
Answer Summary
Members opened up about how relationship status and partner understanding deeply affect emotional wellbeing when living with PBC and related... Read more
Isn’t it peculiar how whether we have a partner or not, whether they understand or not, isolation can start from within oneself and manifest outward as a need and a burden. How peculiar. Hmmm
@A myPBCteam Member i went to the PBC Foundation patient conference in Sept and there were quite a few partners there in attendance with their pbc patient other half. It was a big eye opener for the partners as they started to shift their understanding and believe what their partner has been saying - it is much harder to be dismissive of 160 people in a room all saying the same thing than ‘just my partner complaining again!’
I think it seems to be lonely and isolating in one way or another for those with and without a partner.
Luckily we are here to help each other 😎
Im diagnosed with major depressive disorder, anxiety, panic attacks..my partner is finally understanding my physical pain and mental pain..if we ‘looked sick’ people would be more understanding..it’s sad
My husband just doesn't get it. When I tried to discuss the fact that my condition had worsened somewhat in the last couple of years. He didn't want to discuss it. Just recently he experienced a bad fall that caused a broken neck and a bruised spinal cord. He currently in a rehab facility. I'm taking care of him. Our situation has done a complete 360. Life as he knew it doesn't exist. Now he's more understanding towards me. And sorry for blowing off my concerns for my health.
Thank you both for that perspective. Here I am combining loneliness wilh the isolation of my illness thinking how much better it would be if I had a S. O. Wasn’t even thinking of the challenges face with a S. O. Understanding in depth.
Perspective is everything. Thanks for letting me see the backyard.
Lew
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