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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 24
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myPBCteam

Great questions! Here's what the numbers look like in the U.S.:

- About 65 out of every 100,000 women in the U.S. have PBC
- That adds up to fewer than 110,000 American women (based on 2022 data)
- For men, about 15 out of every 100,000 are affected

These numbers may not tell the full story, as PBC is likely underdiagnosed in Show Full Answer

Great questions! Here's what the numbers look like in the U.S.:

- About 65 out of every 100,000 women in the U.S. have PBC
- That adds up to fewer than 110,000 American women (based on 2022 data)
- For men, about 15 out of every 100,000 are affected

These numbers may not tell the full story, as PBC is likely underdiagnosed in some groups. Globally, the numbers vary quite a bit. Worldwide, anywhere from 7 to 940 people per million have PBC.

That's quite a wide range! The variation exists because PBC appears more commonly in some parts of the world than others, and differences in healthcare access and awareness affect how often it gets diagnosed.

So while PBC is considered a rare condition, you're definitely not alone in navigating it.

October 24

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