Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
myPBCteam asked a question 💭
San Francisco, CA
December 28, 2023
 · 
Reactions

Answer Summary

Members shared a wide range of symptoms they experience with PBC, with fatigue being the most common, followed by brain fog, bone and joint... Read more

Members shared a wide range of symptoms they experience with PBC, with fatigue being the most common, followed by brain fog, bone and joint pain, nausea, itching, and poor sleep. Several members described serious complications including ascites, portal hypertension, varices, low platelet counts, and liver cancer, with some undergoing procedures like TIPS or surgery to manage these issues. A recurring theme was the challenge of living with multiple overlapping conditions and the importance of advocating for active treatment rather than simply monitoring a progressive disease.

A myPBCteam Member

Is anybody having issues with vision?

January 22, 2024
A myPBCteam Member

Fatigue joint pain dizzy mood changes stomach pain stomach swelling and once in a while a yellow tint to my skin nausea varicose veins but I’m not an any meds my dr says we will just monitor I am on Zepbound for fatty liver looking for another dr because PBC is progressive I want to slow it down not monitor

March 31, 2025 (edited)
A myPBCteam Member

Fatigue,pain in liver area,nausea not all the time comes and goes

July 8, 2024
A myPBCteam Member

Fatigue,brain fog,weight gain,bone pain,poor sleep.

January 20, 2024
A myPBCteam Member

I got the ascites under control but my back pain and the bone pain in my arms and hips are awful also. I quit taking OX Bile but still taking Tudca which is suppose to be good for itch control but confused because I think it is another form of bile salts which builds up in your skin that makes the itch. So confused.

May 25, 2025

Related Questions

View All
A myPBCteam Member asked a question 💭
Montvale, VA

A myPBCteam Member asked a question 💭
United kingdom yorkshire

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In