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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 13, 2024
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Members who have been diagnosed with autoimmune hepatitis, often overlapping with PBC, shared their experiences starting medications and... Read more

Members who have been diagnosed with autoimmune hepatitis, often overlapping with PBC, shared their experiences starting medications and managing symptoms like fatigue, leg cramps, headaches, jaundice, elevated liver enzymes, and occasional itching. Several members described the diagnostic journey, including waiting for biopsy results, tracking ALT and AST levels, and navigating treatment plans that involve combinations of ursodiol, budesonide, and mycophenolate. A recurring theme was the anxiety and hope surrounding definitive diagnosis, the relief of finally starting treatment after uncertainty, and the mutual support members offered through prayers and virtual hugs as they face the challenges of living with overlapping autoimmune liver conditions.

A myPBCteam Member

Hugs to you. Hope you find out for sure what's going on.

My doctor said I didn't have the AIH, then put me on meds for it then took me off saying I don't . My alt and ast have always been high. They've wanted to put me on the Octavia but have to wait a year which is May. Diagnosed May 2024.

February 17, 2025
A myPBCteam Member

((((Hugs))) that must be very difficult.
I'm doing more research on the autoimmune hepatitis. But what I've found it's the fatigue, jaundice and brain drain that's the same as PBC. It's an overlap of both.

November 16, 2024
A myPBCteam Member

Hi Amanda, ursodiol, budenoside, mycophenolate (cellcept)… Budenoside is 9 mg for 2 weeks, then 6 for two weeks, then 3 mg probably stay there. Looking forward to getting down to 3 mg., don’t like steroid side effects!

March 11, 2025
A myPBCteam Member

Saw your other post @A myPBCteam Member

March 5, 2025
A myPBCteam Member

Which meds are you taking @A myPBCteam Member

March 5, 2025

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