Thank you Vicki. I sure will. I just take it day to day. As everyone is different. I found that not wondering what this day will bring upon awaking is helpful. I start my day and hope for the best and deal with the day at hand.

I am diagnosed with Hashimoto with thyroid nodule, growing meningioma, bipolar 2, generalized anxiety, Chronic stress disorder.(part of the ptsd),PTSD, type 2 diabetes, and occipital and cervicalgia migraines. I’m also in the process of being tested for Celiac.
My best advice : meeting your medication half way. Another piece based on experience is “Don’t go into bad neighborhoods.
Let me try to explain: With medications for my physical health if I don’t follow the directions it can and in the past caused complications.
When I speak about bad neighborhoods I use for control over that slippery slope of doom and gloom. If I don’t go there then I can find some safety in knowing not everything has a bad/deadly outcome.
I find humor and gratitude also help. Much like the chronic diseases and disorders we face the things above don’t always work but I keep trying to find new coping techniques.
PS Today so far is a good day. Can’t be sure about an hour from now but I’m grateful for this moment in time.

In 2021 I was also diagnosed with fibromyalgia. At this point for me resting and slowing down a bit helps with having some energy as the fatigue can be horrible for me at times. I am on medications for the fibro and finally it is helping with the pain that I have been dealing with. Staying in bed is not an option. I move around as much as possible. GO for short walks to stay active.

keep us posted Lisianne! Thinking about you and hope you get some much needed answers and better care! I will be following and checking back!🙏🏼🤗

Hi. Alongside my PBC I have Antiphospholipid syndrome, Polycythemia Rubra Vera a massive splenomegaly of 28.2cm, liver cirrhosis and portal vein hypertension . You just have to live each day. It’s worse when you don’t know what stage one of them is at when you know they have gotten worse but you can’t put your life on hold or you will worry yourself to death.