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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 9, 2025
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Answer Summary

Members connected over the frustrating experience of constant head itching, with many describing sensations of crawling bugs on their scalp,... Read more

Members connected over the frustrating experience of constant head itching, with many describing sensations of crawling bugs on their scalp, face, and ears that sometimes drive them to feel like they're going crazy. Several members shared helpful strategies, including tracking potential triggers like shampoo, food, or skincare products, trying medications like Ursodiol, using soothing products such as CeraVe for intense itch lotion, Aveeno shampoo, or Osea oils, and noting that symptoms often worsen at night or in public settings. A recurring theme was the relief of knowing others share this maddening symptom and the importance of experimenting with different products and medications to find what brings comfort.

A myPBCteam Member

Yes I have extremely itchy head and ears !

April 10, 2025
A myPBCteam Member

Aveeno shampoo and lotion

July 7, 2025
A myPBCteam Member

Also foods you eat can have an affect on the itching

July 5, 2025
A myPBCteam Member

Keep a diary of foods, liquids and product you eat, drink and wear. Maybe it's the shampoo or product you use.

July 5, 2025
A myPBCteam Member

My scalp itches so bad at times. Don't have much itching other then from my neck and up. Drives me nuts. Feels like little bugs are crawling on my face.

April 14, 2025

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