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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 20, 2025
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Answer Summary

Members responded to a question about profuse sweating with PBC, with many sharing that they too experience excessive sweating, sometimes... Read more

Members responded to a question about profuse sweating with PBC, with many sharing that they too experience excessive sweating, sometimes described as being drenched after showers or any physical activity, while others noted they do not have this issue or experience the opposite problem of feeling excessively cold. Several members offered practical insights, including that autoimmune conditions can lead to hyperhidrosis and heat intolerance, that the medication Ursodiol may rarely cause sweating, and that hormonal changes could also be a factor, with the consistent advice being to discuss these symptoms with a doctor. A recurring theme was the varied nature of PBC symptoms across individuals, the importance of medical guidance to rule out other causes, and the comfort found in knowing others share similar struggles with temperature regulation and sweating.

A myPBCteam Member

I have not had that experience, but I am 67 years old. I would check with your doctor – especially with other issues going on in addition to PBC. If you have a MyChart app, I would write the question to both my primary care, physician and gastroenterologist and hematologist.

September 20, 2025
A myPBCteam Member

I do too! It's aweful

September 28, 2025
A myPBCteam Member

No. Thank goodness. I still get a few hot flashes, but that is it.

September 27, 2025
A myPBCteam Member

Hi I have the same problem sweating its like im standing under a shower it is ridiculous which makes my anxiety worse 😢

September 23, 2025
A myPBCteam Member

Thanks so much, Jim!

September 22, 2025

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