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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have been having swelling in my feet and ankles. So tight! Anyone else have that and what do you do about it?

A myPBCteam Member asked a question 💭
Wichita, KS
October 28, 2025
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A myPBCteam Member

Ck w your Dr. I have found salt is not my friend. Limit added salt n increase water. I only drink plain water most of time. Good luck💕

October 28, 2025
A myPBCteam Member

Definitely let your doctor know. There are many things that can cause this.

October 28, 2025
A myPBCteam Member

It’s caused by diet as well … low as possible salt and sugar. You get so much hidden in foods. No sunflower oil seed oils… read all labels carefully. I actually think URSO makes it worse too … I’m taking it and the side effects are brutal for me… swelling, fatigue, eye problems and dizziness. I went to a natural Ox Bile… so much better… also get vitamin E checked … a deficiency is possible… all my opinion thru research and symptoms. Hope this helps

October 28, 2025
myPBCteam

Are you experiencing swelling and tightness in your feet and ankles with PBC?

Yes, swelling in the feet and ankles (called edema) can happen with advanced PBC. This occurs when fluid builds up in these areas, stretching the skin and causing discomfort and pain.

Here are some approaches that may help:

Lifestyle Changes
- Show Full Answer

Are you experiencing swelling and tightness in your feet and ankles with PBC?

Yes, swelling in the feet and ankles (called edema) can happen with advanced PBC. This occurs when fluid builds up in these areas, stretching the skin and causing discomfort and pain.

Here are some approaches that may help:

Lifestyle Changes:
- Limit your salt intake, as sodium causes fluid retention
- Elevate your legs when resting
- Avoid standing or sitting for long periods

Massage Therapy:
- Gentle massage can help move excess fluid away from swollen areas
- Stroke the fluid toward your torso when massaging
- A massage therapist can show you the right amount of pressure to use

Medical Treatments:
- Your doctor may prescribe diuretics (like furosemide) to help reduce fluid buildup
- Compression stockings may help prevent swelling before it starts, but check with your doctor first, especially if you have circulation issues

When to See Your Doctor:
Edema can be a sign of advancing PBC, so it's important to discuss this symptom with your hepatologist. They can determine the best treatment approach for your specific situation and may need to adjust your PBC management plan.

October 28, 2025

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