Do many people seek second opinions for PBC?
Yes, seeking second opinions is common and encouraged when dealing with PBC, especially if you're uncertain about your diagnosis or feel you're not being heard. Several myPBCteam members have shared experiences of seeing multiple doctors before getting the right diagnosis or Show Full Answer
Do many people seek second opinions for PBC?
Yes, seeking second opinions is common and encouraged when dealing with PBC, especially if you're uncertain about your diagnosis or feel you're not being heard. Several myPBCteam members have shared experiences of seeing multiple doctors before getting the right diagnosis or finding a specialist they felt comfortable with.
One member saw three different doctors over nearly two years before receiving the correct PBC diagnosis. Another member had an initial misdiagnosis and sought out a team of specialists for a second opinion, which led to her accurate PBC diagnosis.
Finding the right specialist matters
When your numbers seem borderline, it's particularly important to work with someone experienced in PBC. Members have found success by:
- Researching hepatologists who specialize in PBC
- Looking for doctors with experience treating diverse patient populations
- Scheduling consultations with multiple specialists
- Asking your primary care doctor for referrals to trusted specialists
Cleveland Clinic consideration
Cleveland Clinic's online second opinion could be a good option. When choosing where to get a second opinion, consider hepatologists or medical centers known for liver disease expertise. Some members have scheduled appointments across the country to find the right fit.
The key is finding a specialist who listens to your concerns, explains your test results clearly, and makes you feel respected and heard.
December 29, 2025
Join
Your Privacy Choices
