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I have always been mindful of my health, especially since I am adopted and have no medical information. After my diagnosis, my anxiety went though the roof. Google is not our friend!! Now that I’m on Zoloft, I have calmed down quite a bit, but was just wondering if other people with PBC felt similar to me.
@A myPBCteam Member yes I had massive diagnosis anxiety, and now I mostly have 'being treated by a gastroenterologist who doesn't know enough' anxiety! The PBC Foundation and all their great info and services keep me one step ahead of the gastro - a good way to channel the anxiety... learning about it all myself. But of course that is itself pretty tiring.
The anxiety was be devastating when I was first diagnosed. I know that mine is part inherited and part environmental.
Since I was raised in the Midwest with parents from the depression era, I only remember going to the doctor or having a house call twice growing up. I was taught that you pull up your boot straps and unless your hemorrhaging slap a bandage on it and move on. Hence my other issues weren’t diagnosed correctly or enhanced due to lack of care on my end. (5 year hip pain most likely bone on bone for 3) I’m glad that the Zoloft helped. Women are treated differently than men and told that things are in our head more often than looking for a cause. It really is discouraging that we are treated in the medical field often as nonsensical or second class citizens. I was so excited at my last liver appointment when the first thing out of her mouth was “Your SYMPTOMS ARE REAL, and you don’t need to have your ability to enjoy your life to the fullest.”
So do I feel like a hypochondriac yes sometimes but then I remember that this is real, my brain when it comes to my physical health doesn’t usually lie to me. And I deserve to be happy and taken care of even if I’m doing it myself.
Love and joy!
I have noticed since joining mypbsteam that everything I have seems to be linked to PBC. Many things I have had for a very long time. Everyone in my family growing up had diabetes (both sides) plus thyroid problems, gall bladder problems etc.. My dad’s side my aunt dird of liver cancer. In her 40s. His side had the viking bloodline where this is supposed to be so strong.
@A myPBCteam Member PBC fostering growth is how I have observed myself these last few months. Patience, trust, acceptance. I 100% agree knowledge is power 💪🤩✅❤️😎⭐️
I went thru the same thing. I swear if my fingernails grew faster I would find a way to tie it in with liver function lol.
I use it to foster temperance. Patience. Realizing 1 thing alone is not a liver conspiracy just a paranoia. Several occurance just may mean take notice only. That temperance has improved my overall stress and hypochondria-like paranoia. Who would have thought a PBC diagnosis would foster growth. lol.
I have learned much.
Knowledge is power. Be powerful
Lew
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