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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 9
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What Causes Fatigue With PBC? Read Article...
A myPBCteam Member

I’ve been experiencing this as well. At this point I try to elevate my feet when possible and try to cut back on salt. I plan to bring this up at my next hepatology appointment.

6 days ago
myPBCteam

Swelling in the feet and ankles (edema) is a known complication of PBC, often linked to portal hypertension or fluid buildup as the disease progresses. It's definitely worth letting your doctor know if this is something you're experiencing or if it's getting worse. Here are some ways to help manage swelling in the feet and Show Full Answer

Swelling in the feet and ankles (edema) is a known complication of PBC, often linked to portal hypertension or fluid buildup as the disease progresses. It's definitely worth letting your doctor know if this is something you're experiencing or if it's getting worse. Here are some ways to help manage swelling in the feet and ankles with PBC:

- Reduce sodium (salt) intake — cutting back on salty foods can help prevent fluid retention and worsening swelling
- Avoid alcohol — alcohol can worsen liver function and fluid buildup
- Epsom salt baths — some people find these help ease swelling and discomfort
- Medications — your doctor may prescribe diuretics (water pills) or other treatments to manage fluid buildup and portal hypertension
- Elevate your feet — raising your feet when resting can help reduce swelling
- Stay active — gentle movement can help improve circulation

One myPBCteam member shared: *"I am having some kind of flare-up with swollen and sore knees and heavy legs."* — so you're definitely not alone in dealing with this.

Always check in with your doctor if the swelling is new, worsening, or affecting your daily life, as it can be a sign of disease progression that may need closer monitoring.

September 9
A myPBCteam Member

Thank you for the information, I will definitely be buying some compression socks! I bought a vibration plate for my husband-I guess I will try that as well.

3 days ago
A myPBCteam Member

I have cut out salt, and that’s helping a lot and I keep my feet elevated also, I just bought some compression socks but haven’t tried them yet, thank you for sharing

3 days ago
A myPBCteam Member

I am on a lasik, elevate my legs, compression socks, and I use a vibration plate to help with the edema

3 days ago

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Saint Augustine, FL