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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 9
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A myPBCteam Member

Drs and hospital know

October 9
A myPBCteam Member

A bit better today and thank you 🙏 😊 ❤️

October 10
A myPBCteam Member

Hi Cindy
I actually do not know where my sodium levels are.
I just saw my liver specialist for the first time.
How are you feeling today?
I will have this discussion with my Doctor.
Take care❤️

October 9
myPBCteam

That's quite a discovery! It sounds like your PBC medications may be having an unexpected effect on your sodium levels, leading you to supplement with sodium tablets to compensate.

While managing sodium is important with PBC — especially to help reduce swelling from water retention — it's really important to get the balance Show Full Answer

That's quite a discovery! It sounds like your PBC medications may be having an unexpected effect on your sodium levels, leading you to supplement with sodium tablets to compensate.

While managing sodium is important with PBC — especially to help reduce swelling from water retention — it's really important to get the balance right. Too little sodium can cause its own problems, just as too much can.

A few things worth keeping in mind:
- Self-supplementing with sodium tablets without medical guidance can be risky
- Your doctor needs to know about this interaction so they can monitor your levels properly
- There may be a better, safer way to manage this side effect

Please bring this up with your hepatologist as soon as possible. They can check your sodium levels through bloodwork and advise on the safest way to manage this — whether that means adjusting your medication, changing your diet, or finding a safer supplementation approach.

Tracking your symptoms and any changes in a notebook or app can also help you have a more informed conversation with your doctor about what's been happening.

October 9

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