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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How have people kept working with the fatigue?

A myPBCteam Member asked a question 💭
Australia
October 12
 · 
Reactions
A myPBCteam Member

Hello Pippa.
Even though I am retired, I understand what you are saying.
I am struggling with the fatigue I have.
I have issues with any form of moving around.
I am newly diagnosed!
Is this how I will feel long term?
Why is it so hard now?
I would not be able to work at a job.
Listen to your body. You will know what work schedule will be best for you.
I am sorry that you are not feeling well.
I hope that you will feel better soon.
I know very little about PBC and the symptoms and problems associated with it. I have learned alot from you. Thank you❤️

October 16
A myPBCteam Member

Good question. I am on sick leave at the moment on a partial return to work. I am wondering if I need to totally rethink what is possible for me work wise longer term. Hard to know if this is my capacity now, forever, for a bit or what?!

October 15
A myPBCteam Member

Hi Sissy.
I share your thoughts on fatigue.
I am retired, so I do not work outside my home.
However, the fatigue that u am experiencing is every day. Dealing with this is very difficult for me.
Some days it is all I can do to get dressed.
I decline invitations sometimes.
I do not know the answer to your question.
But I am here to support you!
Take care❤️

October 13
myPBCteam

Keeping up with work while managing PBC-related fatigue is a real challenge, but many people have found ways to make it work. The key seems to be listening to your body and building routines that protect your energy.

Here are some strategies that myPBCteam members and others with PBC have found helpful:

- Start the day with Show Full Answer

Keeping up with work while managing PBC-related fatigue is a real challenge, but many people have found ways to make it work. The key seems to be listening to your body and building routines that protect your energy.

Here are some strategies that myPBCteam members and others with PBC have found helpful:

- Start the day with movement — even a short morning walk can boost energy and mental clarity before work begins
- Time your day wisely — if possible, start work later in the morning when energy levels are more manageable
- Set a hard stop time — one myPBCteam member shared that leaving work by a certain hour prevents fatigue from becoming dangerous, like impairing the ability to drive home
- Use short naps strategically — a 20-minute power nap at lunch can recharge enough to get through the afternoon
- Lean on your support system — having a family member or friend on call for tough days can reduce stress and keep things manageable It's also worth talking to a doctor about whether any medications, nutrient deficiencies, or sleep issues might be making fatigue worse — sometimes addressing those can make a meaningful difference in day-to-day functioning.

October 12
A myPBCteam Member

I had to resign after almost 20 years of teaching due to my illness and all the severe symptoms, I applied for disability.

October 18

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