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On a PBC Foundation Q and A with Professor David Jones this week he said that aiming to drinking 2 litres of water before 2pm can have an impact on fatigue. He was clear that tea soda coffee juice doesn’t count. Not to rush drink it all at once but steadily aim to drink it before 2pm. He explained the reasons why - which I won’t explain here incase I misconstrue his thoughts (it was to do with blood volume and a mechanism that PBC patients often have an issue with, which is a feature of getting… read more
Thank you Pippa for sharing so much information! It is greatly appreciated!
Thank you! I will definitely join!
It means a lot to me as most of my information comes from this site and the links that are posted. I really appreciate that you share! Thank you again!
@A myPBCteam Member I enjoy finding out, so might aswell share. Of course it also feels good to share so I get double benefit from that- sharing is caring 😎⭐️
@A myPBCteam Member I would really encourage you to join the PBC Foundation if you haven’t already. They have a lot of info and online support sessions, including wellbeing stuff, and opportunities to connect with others in facilitated sessions as well as those excellent expert Q and As. They are such a good source of knowledge (largest pbc patient support network in the world). In last weeks Q and A there was me listening from Sweden, people from Japan and Uk and beyond!
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