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Since there was so much new learnings, Im going to try and post things that really stood out for me and might be significant for others with PBC. Ill start with THE most ah hah moments.
Normalization of ALP and total bilirubin is a new treatment goal for PBC
“Beyond adequate” are the key terms!
Before this my ALP was higher than normal and that was adequate. So mine has been adequately high for 34 years (but total bilirubin always normal). I now am seeking another drug to normalize my ALP. I… read more
@A myPBCteam Member 'Normalization of ALP and total bilirubin is a new treatment goal for PBC' Amen to that! just need to get my gastro to get up to speed (I already set this goal for myself however!)
Thanks for sharing
@A myPBCteam Member. You have a double whammy. Its a good thing we now have a variety of treatments. Wishing everything good for you on your journey Mary!
My ALP is normal range. Besides PBC I was diagnosed with Gilbert Syndrome which causes my bilirubin to be elevated.
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