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Professor David Jones spoke a little about this autonomic disfunction recently on a Q and A session from the pbc foundation - mostly relating fatigue to dizziness on standing and how drinking water -2l before 2pm can help. But prob best is to pose your question to the pbc foundation and they will ask one of their medical advisors at an online Q and A.
I dont understand why they arent covered as a high number of people with pbc experience this.
My gp is currently trying to get the full picture to add it on my referral as my old gp left it out and I guess thats why im still eaiting for an appointmnet since april. I collapsed with an ischemic bowel bleed too which was also left off my referral. Hopefully my new gp will get me the appointment. Thanks for replying
That sounds really exhausting to deal with — blood pressure swings and a racing heart on top of everything else PBC brings. Unfortunately, autonomic dysfunction, nocturnal hypertension, and daytime tachycardia aren't topics covered in the available PBC-specific resources here, so it wouldn't be right to guess at advice on Show Full Answer
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