Testing started fall of 2022 so around then. Why? Does the fatigue and brain fog get better. BTW I hate ‘brain fog’ - that sounds like I’m groggy or having a 57-year-old moment. I was low iron for decades so have experienced temporary cognitive issues due to low iron. But now I mean serious memory issues like not being able to even envision how to get somewhere. Totally blank. I mean rereading stuff 10 times to try to understand what it’s saying or asking - real comprehension issues. Sometimes in convo’s, I just don’t get what the person is saying.

Tim Hortons staff: “Do you want me to scan your app?”

I’m like ‘what is she asking me? Scan? Scan an app???’

What is happening to me???

I did start ssdi in 2013. I did get a lawyer just because I really couldn't understand the paperwork. I filed in 2013 and in TX there is a limit of what a lawyer can charge. It's 3000 here and it is taken from back pay owed.

I’ve been on Disability since 2009. I have the PBC, Raynaud’s, Mitchondrial Myopathy,Osteoarthritis,Connective Tissue Disease, and a neck and back injury from a automobile accident in 2003. I used to be a CNA but, it’s impossible to lift and maneuver clients with these disorders.

There just is no balance. I’ve been trying for more than a year to adjust to Urso, it just makes me feel lousy. Some days it’s stomach aches, sometimes just ‘gut rot’ , usually nauseas, but it keeps my alk phos down so I choke it back.

Oh no giving up. Just surprised how real this fatigue is. I thought ‘oh a little tired - no big deal’ but wow, this level of fatigue was not expected