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Real members of myPBCteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 22, 2025
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A myPBCteam Member

There is no cure for PBC. The meds that we have for PBC help us to slow the progression of PBC.
This is part and parcel a full on attack to your whole body. Your Immune System is attacking your organs along with your whole body. We don’t understand the cause of this attack.
This may be your first Auto Immune issue on your body, with PBC. But know that it’s a full on attack to your body. These AI diseases are “Package diseases”. That means that if you have one you will get more.

There are 100 of them. You can discuss this with your Gastro or Hepatologist.

April 23, 2025
myPBCteam

Yes, this is true. Even with stable lab numbers, PBC can still progress. Doctors use multiple factors beyond just lab tests to monitor disease progression, including physical symptoms and liver structure changes.

Regular monitoring through liver function tests, particularly bilirubin levels, helps track disease Show Full Answer

Yes, this is true. Even with stable lab numbers, PBC can still progress. Doctors use multiple factors beyond just lab tests to monitor disease progression, including physical symptoms and liver structure changes.

Regular monitoring through liver function tests, particularly bilirubin levels, helps track disease progression. However, these tests are just one piece of the puzzle. The disease progresses through different stages, from early inflammation to potential cirrhosis, and each stage requires careful monitoring. It's important to actively track your symptoms and lab results over time. Consider keeping a record of your lab values and symptoms to discuss trends with your healthcare provider. This helps create a more complete picture of your disease progression beyond just the numbers.

If you're concerned about your disease progression, discuss this with your hepatologist. They can evaluate multiple factors including physical symptoms, lab work, and possibly additional testing to assess your current disease state.

April 22, 2025

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