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My hair has also thinned out to the point it’s like a newborn.
Is anyone else having issues like this?

March 28
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A myPBCteam Member

Collagen hair skin and nails gummies, bone broth, get a baby brush with soft bristles brush your hair while you read or watch TV carry it with you. The stimulation and reappearance of hair (and it will reappear) will strengthen and improve blood supply. My nail and hair returned with gusto stronger shinier and prettier than ever. Hope this helps . Ps. Also faster I saw results in one month after 3 months the thickness of my hair was unprecedented as was my fingernail length and strength
😃

March 28
A myPBCteam Member

Hi Jivelle
I haven’t seen a dermatologist as of yet.
There are no parasites or infections going on.
I have to use unscented products as I am allergic to scented products and the preservatives that are in most shampoos and soaps and have to change between ones that I can use as not to develop allergic reactions to them.
I am post menopausal and up until about 6 months ago I had no issues with hair thinning or itching. I just wanted to know if anyone else had itching other than the basic itching areas or if it’s possible that it might be the PBC and/or my immune system attacking another part of my body.
I am learning that this disease is not generalized but symptoms can/are specific to the individual.
I see my primary hopefully some time soon and I’ll be discussing the additional symptoms soon.
Thanks for the questions though as they do make me stop and think.

April 12
A myPBCteam Member

Have you seen a dermatologist? How long has it been going on and when did it start - if you recall? Did you find the root cause of the itching? Do you use harsh shampoos and hair products? Have you checked for fleas, lice, scabies, parasitic or fungal infections etc? Are you going through (peri)menopause or post-menopaused? Have you done allergy testing of your fabrics, detergents, clothes conditioners, air fresheners etc?
I'm sorry, I'm all questions here. Hope you resolve it soon.

April 12
myPBCteam

Are you experiencing scalp itching, tenderness, and significant hair thinning with PBC?

Itching is a very common symptom of PBC, affecting about 73-81% of people with the condition. While itching typically occurs on the arms, legs, palms, and soles of the feet, it can happen anywhere on the body, including the scalp.

The Show Full Answer

Are you experiencing scalp itching, tenderness, and significant hair thinning with PBC?

Itching is a very common symptom of PBC, affecting about 73-81% of people with the condition. While itching typically occurs on the arms, legs, palms, and soles of the feet, it can happen anywhere on the body, including the scalp.

The itching happens because damaged bile ducts cause bile acids to build up in your bloodstream. When these bile acids reach your skin, they can trigger nerve endings that send itching signals to your brain.

However, the combination of severe scalp tenderness and significant hair thinning you're describing needs attention. While dry skin is common with PBC, the specific symptoms you're experiencing—especially the tenderness and dramatic hair loss—should be evaluated by your doctor or a dermatologist.

They can determine whether these symptoms are directly related to PBC or if there's another issue that needs treatment. Your healthcare team can also recommend appropriate treatments to help manage the itching and address the scalp tenderness and hair thinning.

Don't hesitate to reach out to your medical team about this—these symptoms are affecting your daily life and deserve proper care.

March 28

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